Our approach

Know the person. Make room for their choices.

A young adult is more than a diagnosis or an unfinished referral. The point of coordination is to make more room for their life: the people, places and plans that matter to them.

Begin with the person’s own goals.

We start with what the young adult wants, how they communicate and what support they find useful. That might mean getting ready for college, keeping a job, making a change at home or simply spending less time chasing care.

Those goals belong in the plan. If circumstances or wishes change, the conversation and the plan should change with them.

Include family with clear roles.

Families can be an essential source of knowledge and support. Each supporter uses their own account, with access based on the member’s sharing choices and the applicable consent role.

Caregiver coaching helps people prepare, share the work and navigate changing roles. Supporting a person’s decisions can look different for different families; the young adult’s wishes stay part of the conversation.

Support for families and caregivers

Make communication easier to use.

The website and app include controls for text size, contrast and motion. The app also offers easy-read settings. Requests use words to explain their status, so progress does not depend on reading a color.

Tell us what works for you, including communication devices, typed questions or having a trusted person join a conversation. We will discuss the support available rather than assume one way of communicating works for everyone.

Give technology a clear job.

Helen helps explain available care updates, prepare questions and draft notes. She is an AI assistant and can make mistakes. A person chooses whether to send a draft, and a care team member reviews it.

The pilot does not use Helen to diagnose, choose treatment or automatically monitor changes in someone’s health. Any broader AI role would need separate evaluation before becoming part of the service.

What Helen can help with today

Learn with the people using it.

We want young adults and families involved in shaping the pilot: what to prioritize, what feels confusing, what helps and what still leaves too much work on them.

We will ask whether care requests move forward, next steps feel clearer and families feel more supported. We also need to understand what it takes to deliver that support well. These are questions for the pilot, rather than results we have already achieved.

Be clear about information and responsibility.

Supporters receive the information shared with them. Your navigator follows coordination work, while your existing doctors and services remain responsible for their own decisions and care.

Our privacy page explains what information the website and app handle. You can raise a concern about access, sharing or the service with the team.

Read about privacy and sharing